TY - JOUR
T1 - Spanish Family Quality of Life Scales
T2 - Under and over 18 years old
AU - Giné, Climent
AU - Vilaseca, Rosa
AU - Gràcia, Marta
AU - Mora, Joaquín
AU - Orcasitas, José Ramón
AU - Simón, Cecilia
AU - Torrecillas, Ana María
AU - Beltran, Francesc S.
AU - Dalmau, Mariona
AU - Pro, Maria Teresa
AU - Balcells-Balcells, Anna
AU - Mas, Joana Maria
AU - Adam-Alcocer, Ana Luisa
AU - Simó-Pinatella, David
PY - 2013/6
Y1 - 2013/6
N2 - Background Researchers, professionals, and families have shown increasing concern with the family quality of life (FQoL) of people with intellectual disability (ID) and their families. The goals of this research were (a) to explore how Spanish families understand FQoL by developing 2 different measurement tools for families with a member with ID under and over 18 years old, and (b) to provide 2 diagnostic instruments that will be useful for designing action plans. Method The study comprised 4 stages: (a) focus groups, (b) expert assessment, (c) pilot study, and (d) normalisation and standardisation. The data were collected in 5 regions in Spain, and 1,205 families with a member with ID took part in the normalisation and standardisation of the scales. Results Both FQoL scales were consistent and have valid psychometric characteristics. Conclusions The scales have a diagnostic purpose for use in designing action plans aimed at producing significant changes in families' lives.
AB - Background Researchers, professionals, and families have shown increasing concern with the family quality of life (FQoL) of people with intellectual disability (ID) and their families. The goals of this research were (a) to explore how Spanish families understand FQoL by developing 2 different measurement tools for families with a member with ID under and over 18 years old, and (b) to provide 2 diagnostic instruments that will be useful for designing action plans. Method The study comprised 4 stages: (a) focus groups, (b) expert assessment, (c) pilot study, and (d) normalisation and standardisation. The data were collected in 5 regions in Spain, and 1,205 families with a member with ID took part in the normalisation and standardisation of the scales. Results Both FQoL scales were consistent and have valid psychometric characteristics. Conclusions The scales have a diagnostic purpose for use in designing action plans aimed at producing significant changes in families' lives.
KW - Family Quality of Life Scale
KW - Family needs
KW - Family quality of life
KW - Intellectual disability
UR - http://www.scopus.com/inward/record.url?scp=84877811210&partnerID=8YFLogxK
U2 - 10.3109/13668250.2013.774324
DO - 10.3109/13668250.2013.774324
M3 - Article
C2 - 23521398
AN - SCOPUS:84877811210
SN - 1366-8250
VL - 38
SP - 141
EP - 148
JO - Journal of Intellectual and Developmental Disability
JF - Journal of Intellectual and Developmental Disability
IS - 2
ER -