TY - JOUR
T1 - Ethical challenges of early identification of advanced chronic patients in need of palliative care
T2 - The catalan experience
AU - Gómez-Batiste, Xavier
AU - Blay, Carles
AU - Broggi, Marc Antoni
AU - Lasmarias, Cristina
AU - Vila, Laura
AU - Amblàs, Jordi
AU - Espaulella, Joan
AU - Costa, Xavier
AU - Martínez-Muñoz, Marisa
AU - Robles, Bernabé
AU - Quintana, Salvador
AU - Bertran, Joan
AU - Torralba, Francesc
AU - Benito, Carmen
AU - Terribas, Nuria
AU - Busquets, Josep Maria
AU - Constante, Carles
N1 - Funding Information:
The authors thank all individual members of all of the ethics committees involved in the process: Parc Sanitari St Joan de Deu, Barcelona (Spain); Hospital St Rafael, Barcelona (Spain); Hospital Universitari de Bellvitge, Barcelona (Spain); Hospital Mútua de Terrassa, Barcelona (Spain); SARquavitae, Barcelona (Spain). The authors also thank Mr Bradley J Londres and Ms Sara Ela for their support in reviewing and editing the manuscript. The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
Publisher Copyright:
© The Author(s) 2018.
PY - 2018/1/1
Y1 - 2018/1/1
N2 - Palliative care must be early applied to all types of advanced chronic and life limited prognosis patients, present in all health and social services. Patients’ early identification and registry allows introducing palliative care gradually concomitant with other measures. Patients undergo a systematic and integrated care process, meant to improve their life quality, which includes multidimensional assessment of their needs, recognition of their values and preferences for advance care planning purposes, treatments review, family care, and case management. Leaded by the National Department of Health, a program for the early identification of these patients has been implemented in Catalonia (Spain). Although the overall benefits expected, the program has raised some ethical issues. In order to address these challenges, diverse institutions, including bioethics and ethics committees, have elaborated a proposal for the program’s advantages. This paper describes the process of evaluation, elaboration of recommendations, and actions done in Catalonia.
AB - Palliative care must be early applied to all types of advanced chronic and life limited prognosis patients, present in all health and social services. Patients’ early identification and registry allows introducing palliative care gradually concomitant with other measures. Patients undergo a systematic and integrated care process, meant to improve their life quality, which includes multidimensional assessment of their needs, recognition of their values and preferences for advance care planning purposes, treatments review, family care, and case management. Leaded by the National Department of Health, a program for the early identification of these patients has been implemented in Catalonia (Spain). Although the overall benefits expected, the program has raised some ethical issues. In order to address these challenges, diverse institutions, including bioethics and ethics committees, have elaborated a proposal for the program’s advantages. This paper describes the process of evaluation, elaboration of recommendations, and actions done in Catalonia.
KW - Advance care planning
KW - Chronic conditions
KW - Ethics
KW - Palliative care
KW - Palliative care approach
UR - https://www.scopus.com/pages/publications/85049826381
U2 - 10.1177/0825859718788933
DO - 10.1177/0825859718788933
M3 - Article
C2 - 30001656
AN - SCOPUS:85049826381
SN - 0825-8597
VL - 33
SP - 247
EP - 251
JO - Journal of Palliative Care
JF - Journal of Palliative Care
IS - 4
ER -