TY - JOUR
T1 - Impact of supports and partnership on family quality of life
AU - Balcells-Balcells, Anna
AU - Giné, Climent
AU - Guàrdia-Olmos, Joan
AU - Summers, Jean Ann
AU - Mas, Joana M.
N1 - Funding Information:
This research has been funded by the Ministry of Education and Science of Spain (BES-2007-14898/project SEJ2006-04773) and Secretary of Universities and Research of the Department of Enterprise and Knowledge of the Generalitat de Catalunya . The research would not have been possible without the contribution of the 13 ECI centers and the families who agreed to be a part of this study and to whom we are deeply grateful for their availability.
Publisher Copyright:
© 2018 The Authors
PY - 2019/2
Y1 - 2019/2
N2 - Background: In recent decades, Family Quality of Life (FQOL) has emerged as a decisive construct, both to improve the living conditions of the families of people with disabilities and to assess the results on the services and supports that they receive. The aim of this research is to determine the perception of the families regarding their support needs, the quality of their partnerships with professionals, and their FQOL and then identify to what extent the supports of early childhood intervention centers have a positive impact on the families’ FQOL while exploring whether the family–professional partnership has become a fundamental intervening factor of FQOL. Method: The participants were 202 families with children aged 0–6 with intellectual and developmental disabilities. We used the structural equation model to analyze the influence that the adequacy of the supports and the partnerships exerted on FQOL. Results: The results indicate that the families have language and speech support needs for their children and information needs for themselves, and that they are mostly satisfied with their partnerships with the professionals and their FQOL. Our results also indicate that their degree of satisfaction with the support was a good predictor of FQOL and their ratings of partnership quality was a key factor interceding on this effect. Conclusions: This study provides professionals and public institutions with guidance when designing plans to improve early childhood intervention centers so the quality of life of these families and the progress of children with disabilities living in Spain become progressively stronger.
AB - Background: In recent decades, Family Quality of Life (FQOL) has emerged as a decisive construct, both to improve the living conditions of the families of people with disabilities and to assess the results on the services and supports that they receive. The aim of this research is to determine the perception of the families regarding their support needs, the quality of their partnerships with professionals, and their FQOL and then identify to what extent the supports of early childhood intervention centers have a positive impact on the families’ FQOL while exploring whether the family–professional partnership has become a fundamental intervening factor of FQOL. Method: The participants were 202 families with children aged 0–6 with intellectual and developmental disabilities. We used the structural equation model to analyze the influence that the adequacy of the supports and the partnerships exerted on FQOL. Results: The results indicate that the families have language and speech support needs for their children and information needs for themselves, and that they are mostly satisfied with their partnerships with the professionals and their FQOL. Our results also indicate that their degree of satisfaction with the support was a good predictor of FQOL and their ratings of partnership quality was a key factor interceding on this effect. Conclusions: This study provides professionals and public institutions with guidance when designing plans to improve early childhood intervention centers so the quality of life of these families and the progress of children with disabilities living in Spain become progressively stronger.
KW - Early childhood intervention
KW - Family quality of life
KW - Family support
KW - Family-professional partnership
KW - Intellectual disability
KW - Structural equation model
UR - http://www.scopus.com/inward/record.url?scp=85056795708&partnerID=8YFLogxK
U2 - 10.1016/j.ridd.2018.10.006
DO - 10.1016/j.ridd.2018.10.006
M3 - Article
C2 - 30468989
AN - SCOPUS:85056795708
SN - 0891-4222
VL - 85
SP - 50
EP - 60
JO - Research in Developmental Disabilities
JF - Research in Developmental Disabilities
ER -